Wednesday, July 9. 2008Happy Birthday Chloe
Yesterday was Chloe's 3rd Birthday. God gave us a birthday miracle yesterday. I posted about it on our adoption blog, but I did not think to post here. I've copied and pasted the entry from our adoption blog below. If you'd like to see new pictures of John Paul and Dasha then you can visit our adoption blog at ... www.newboldfamilyadoption.blogspot.com There is also a newborn picture of Chloe on there above yesterday's post.
A Birthday Miracle Three years ago today at 11:45 a.m. our lives would change forever. This was the day that God blessed us with our little miracle named Chloe. We did not know until after she was born that she had Down Syndrome. At first we were scared and concerned about many things. But one thing was for sure, we loved this beautiful little girl. She stole our hearts from the beginning and as she grew she stole the hearts of everyone that met her. I'm told that she stole the hearts of strangers as well. One thing is for sure, God gave us a little angel and we were so blessed to be her parents. God decided to take her back on August 15, 2007 and He placed the desire in my heart to adopt another child with Down Syndrome. I knew in my heart that there was a higher reason for her short life and we decided to trust God in the desire that He placed in my heart. We've been scared along the way and at times I have even questioned if this was God's plan for sure. Each time I have questioned it, God has given me confirmation and the strength to press on. Today, on Chloe's 3rd birthday, God gave us a miracle. At 5:00 this afternoon we went to court and became the proud parents of John Paul Newbold. Of course we still have to wait ten days before it is finalized. But today is the day that the judge told us "Congratulations on our new child!" I am just awestruck by how God has worked all of this out. I've been crying tears of joy for the last hour and I just can't believe how good God is. I had asked God to let us have a child by Chloe's birthday, but this is just a miracle. I can't wait to get John Paul in our custody and see the plans that God has for His life. Things may be tough in the beginning, but I know that God has great things in store for John Paul. He has protected him and given him favor all along. The thing that choked me up in court was when they were talking about his mother giving up her rights to him. What really got me was when they said that he has been in the orphanage since December, 2004 and has never had any visitors and that no one in his family has ever expressed interest in him. That's hard to hear about a little child that you have grown to love. I can't wait to get him home and give him the love that he deserves. Never again will he be without a family. We are so blessed to have our new addition to our family, angel # 2! I guess I'll wrap it up by saying...Happy 3rd Birthday Chloe. We love you so much. I know that we have a sweet little angel looking out for us in Heaven. God is still using you to bring us miracles. We love you angel. Wednesday, April 30. 2008Urgent Need for a Little Boy with Down Syndrome
I have updated to let you all know about an urgent need for a four year old little boy with Down Syndrome named Roma. Roma is in an orphanage in Eastern Europe and is going to be transferred to the institution in June. While Roma can still be adopted after he is transferred, this is a fate that no child should have to face.
I met Roma myself in person while on my trip to his orphanage in April. Roma has had a very special place in my heart for a long time. After meeting him I knew why. In spite of the conditions he is currently living in he is able to walk while holding onto furniture. He would be able to walk independently now if he were just given the chance. He is kept in a swing all day and I saw this for myself. Roma is fortunate to have a swing. Nadia, that we are hoping to adopt, and all of the other Down Syndrome children were not so fortunate. We found Nadia sitting in her crib chewing on her bed sheets and rocking herself back and forth because she had no toys or personal attention. After Roma is transferred he will also be kept in a crib. They do not even take these children outside to play. They are labeled the "defectives". One family that just adopted from one of the institutions witnessed with their own eyes children tied to beds naked or only partially clothed. One child was in a crib naked with a pot under him to defecate in. None of these children deserve this! It is my prayer and hope that we can raise enough money to help a family afford to adopt Roma. Adoption grants greatly increase the chances of these children being adopted. Many more families would adopt these children, if only they could afford to. We have decided that ALL donations raised from now until July 1st will go into a special grant specifically for Roma in hopes to find him a forever family. If you are interested in adopting Roma yourself please visit www.reecesrainbow.com and contact Andrea Roberts. Please help us to give this little guy a chance in life. I was unable to post his picture here due to some technical issues. I will continue to try to get that straightened out. Please visit our family adoption blog to see a picture of him there. www.newboldfamilyadoption.blogspot.com Please pray for all of the orphans all over the world, especially the children with Down Syndrome and other special needs. I have witnessed with my own eyes the sad existence that they have in these orphanages. Everyone deserves joy, hope, and a chance in life. We will appreciate any and all donations for Roma, no matter how great or small! Please just help him if you are able. There is a donate button on the front page of this web-site. You can make a donation there or by mail. Our mailing address is... 66 Payne Street Charles Town, WV 25414 Thank you so much! Monday, March 3. 2008Updates, Announcements, and Prayers Needed
I went home this weekend to visit my family and the newest member of my extended family, Dylan Lee Pierce. Dylan is the new baby boy to my cousin, Brandy and her husband Cliff Pierce. He is so cute, a little miracle from God! I would like to ask that you please keep Dylan in your prayers. When he was born he was suctioned out and it caused a fracture on his little skull. He had swelling, but it is going down some now. Pray that his little skull will heal and that all of the swelling will go down. Also, pray that he will not have any adverse effects from the fracture. He's doing really well, but please keep in him your prayers.
I also went to Chloe's place while I was home. I call it her place because I don't to call it her grave. It sounds too morbid to me and it is her little place until Christ returns and her little body meets her spirit in the air. I can't wait for that day!!! I made her an Easter floral arrangement with pinks, yellows, hot pink daisies and aqua carnations. It looked very cheerful, like her. I put some Easter picks in it too. One bunny rabbit, an Easter egg, and a lamb. I tied an Easter bunny around the vase. Someone put a stand with a hook in the ground and hung wind chimes on it, after she was placed there. We don't know who did it, but if you're reading this and you did it, thank you very much!! We hung a cross on it for Easter. It's pastel colors and looks like Easter. It says REJOICE! And you know, that's exactly what I did while I was visiting her place. Chloe has brought Christ's resurrection into reality for me. Easter has never been more real or meant more to me than it does this year! Just the thought that she gets to spend Easter with Christ Himself makes my heart so full. And through Christ's death and resurrection, I have the promise of spending eternity with Jesus and my little angel. Even though she's in Heaven, God continues to use her to bless me and to help me to grow closer to Him. I struggled with "faith" for as long as I can remember. I always prayed for God to give me more faith and to help me not to doubt that He is real. I'm not proud of this doubt that I had, but I think we all face it at some point in our lives. I even had a dream one night (long before Chloe was born, or even before I was married to Rick) that I was walking along the beach with Jesus and I asked Him "to help me to believe without a doubt". He took my finger and placed it in His nail scar. Then I woke up, and once I realized that I was no longer walking with Jesus, I was sad for days!! Then I realized that He lives in me! Pretty elementary stuff, but it was still hard for me to grasp. It is true that we have to come to Christ with child-like faith. I am proof of that. Even after this, I struggled with faith. I prayed and asked God to give me more faith for a very long time. Then Chloe was born and my faith journey truly began. It's when I couldn't fix it myself and I was powerless to help Chloe, that I was forced to have faith and trust in God. Having Chloe revealed to me that I had stronger faith than I was giving myself credit for. I just had never had to rely on my faith in such a powerful way. I think I was afraid to. God used Chloe to increase my faith and to show me how to release it. Through her life and death, my prayer for faith has been answered. It's not how I would have chosen for it to have been answered, but now I wake up everyday trusting in God that He has Chloe safe in Heaven. For the rest of my life, I will have faith in knowing that Chloe is waiting on me in Heaven with Jesus. There is nothing more beautiful than Christ's love for us! I could never begin to explain all that God has given me through Chloe. Love, faith, hope, joy, peace, strength, just to name a few. As I stood talking to Chloe at her place yesterday, I was flooded by these gifts that she brought me. I stood there and rejoiced in what God has done for me! I rejoiced over Christ's resurrection and in the promise of Heaven. I rejoiced and thanked God for Chloe and the growth that He has given me through her. I rejoiced and thanked God that I will see Chloe again! I am also so thankful that God has NEVER left me, no matter where I was in life, or how bad I've messed things up. I'm thankful that He is patient with me as I grow and overlooks my flaws!! He was with us the entire time with Chloe, loving us and giving us strength. He showed us the power of community and prayer through all of you. I'm still amazed by the outpouring of love and support during that difficult time. It restored my faith in people! Thank you all so much for allowing God to use you to minister to our needs. It still means a lot to us! For those of you that may not know, we are in the process of an international adoption. We would also really appreciate your prayers during this time. After much prayer, we are in the process of trying to adopt 2 little girls with Down Syndrome from Eastern Europe. There names are Nadia (4 years old) and Zhenya (1 year old). We have a separate blog set up for our adoption, if you would like to follow our journey. There are pictures of the girls on our blog. I only have one picture each, but I hope to get more in April. Newbold Family Adoption Blog We reached this decision after a lot of prayer and consideration. I'd like to add that we are in no way trying to replace Chloe. Chloe can never be replaced and she will always be our little miracle! It is through having Chloe that we know that we want more of these special little children in our lives. After Chloe went to Heaven, and we began researching the purpose for her foundation, I learned how Down Syndrome orphans often suffer in other countries. Best case scenario, they do not receive the special attention and love that they deserve. Worst case scenario, they are bound, tied to beds, and often not fed, or bathed. All of the Down Syndrome Orphans will ultimately end up spending the rest of their lives in mental institutions (that is, if they actually live to adulthood) You can go to the following link to read a story that was in the NY Times that will attest to the abuse that these children often endure. I warn you that it is very disturbing and the pictures are heart wrenching! But these children endure this every day, so you should be able to endure it for the few minutes that it will take to read the article. I had no idea that this went on in the world, and we had a child with Down Syndrome. Please read it to become aware and to spread the word. These children are literally pushed away from society's view and their cries need to be heard! NY Times Article After all Chloe gave us, we couldn't stand idly by and not give back. We as Americans treat our pets better than a lot of these children are treated. Please pray for a quick, smooth adoption process and that the girls will be taken decent care of until we can get them home. Nadia (4) is scheduled for transfer to an older orphanage in July. Pray that we will get to her before she is transferred (if it's God's will). After the children are transferred to the older orphanages, their chance of survival greatly decreases! Some of the older orphanages in the country our girls are in (which I can not disclose) are said to bury up to 30 children a month! It's a poverty stricken country and the children do not receive good medical care, if they receive it at all. Some of the orphanages are better than others, but I'm not sure which orphanage Nadia would be transferred to. Just pray that she won't be transferred and that God will keep both of the girls in His hands and keep them safe. I also ask that you remember to keep baby Dylan in your prayers as well. Thank you so much! Wednesday, November 21. 2007What I'm Most Thankful For
As Thanksgiving nears it's inevitable for us to miss Chloe even more than usual. Traveling home to NC without her is so strange. I'm still not use to driving the car without hearing her babbling in the backseat. When that feeling of emptiness sets in I begin to think of all of the beautiful memories we have of Chloe. I know just how lucky we were to have such a special, loving, and perfect (in my eyes) little girl. Sometimes I still can't believe that God chose to give us such a beautiful child. It's been hard for me at times to understand why God chose to heal Chloe in Heaven rather than here on Earth. One day before she passed away I was crying and praying, asking God to heal Chloe and to please let us have more time with her. I heard the voice of the Lord say, "It will hurt more later". I didn't fully understand that until recently. One day a few weeks ago I was having a hard day and I sat down to read my Bible and pray. I asked God to please give me peace over why he took Chloe from us. I asked him to show me some scripture that would help me to understand. He led me straight to Isaiah 57, which I don't remember ever reading or hearing before. Here's what it says...
Isaiah 57: 1 The righteous perish, and no one ponders it in his heart; devout men are taken away, and no one understands that the righteous are taken away to be spared from evil. 2 Those who walk uprightly enter into peace; they find rest as they lie in death. It all made more sense after I read that. You see God had been preparing me for Chloe since I was pregnant with her. When I was pregnant with her is when I first began hearing the voice that I believe is the Holy Spirit. It first occurred one day when I was talking to one of my friends that was pregnant at the same time I was. She was talking about how she was afraid her baby would have Down Syndrome because she had an aunt that had DS. I heard the voice say to me, "It's your baby not hers". Well needless to say it shook me pretty hard. Chloe had already tested negative for DS with the AFP testing. After she was born they told us she might have DS. I knew she did because I had already been told. She was in the P.I.C.U. for ten days after she was born and I was so scared she would die and never get to go home. I remember thinking to myself, "Is she going to die?" I heard the voice say again, "No, not yet". The two things I feared the most for Chloe from the time she was born was leukemia and someone hurting her. Leukemia is more common in DS, but only 1% of the children are diagnosed with it. However, I feared those two things to my core. By saying I feared someone would hurt her I mean a pervert. We all see how many sick people there are when we turn on the news. Chloe was so loving and trusting of everyone! She did not know a stranger! Then one day while Chloe was playing with her toys and I heard the voice say, "She's too good for this place". I feared what that might indicate. About a week later I looked at her while she was sleeping and I had a vision of her and she was dead. It was very disturbing and I honestly started to think I was going crazy! Then a couple of weeks later I looked at her again and saw her dead, but it was a peaceful image in my mind. However, it was still disturbing! So I had a physical and had my blood and thyroid function checked. Everything was fine. On the way out of the doctor's office I heard the voice say, "It's the baby's blood not yours". I immediately made an appointment and had her checked out. Sure enough she was anemic. It was checked again a month later and her platelets were low. I knew she had Leukemia. So we were admitted to the hospital and the bone marrow results confirmed it. The next day she started chemo. That night I held her and cried and prayed. I heard the voice say, "Expect a miracle". It kept saying it over and over. I expected a healing miracle, but it didn't happen that way. Well, she is healed, but in Heaven! I see miracles in every day now and I know what a miracle Chloe was! Well, I've always known what a miracle Chloe was! That's just one more reason I fought so hard to keep her here. She was like a little glimpse of Heaven here on earth. A little taste of the joy of the Lord. She was my sweet earth angel. The next time I heard the voice was when it said, "It will hurt more later". After I read Isaiah 57 it all made perfect sense to me. My intuition about Chloe was never wrong from the time I was pregnant with her. My fear of Leukemia came to pass so I can only believe that God took sweet Chloe home to protect her from the evil of this world and possibly my other fear for her life. So this Thanksgiving I am thankful for many things. I am thankful that the Lord speaks to me and guides me through this difficult life. I am thankful for Isaiah 57 and the peace that God has given me through that scripture. I'm most thankful that we have the promise of Heaven through Christ! If I didn't have the promise that I will have eternity to spend with my sweet baby I would not make it through this! I am thankful that we had Chloe for two years and for all of the MANY blessings she brought into our lives! I'm thankful for the wonderful husband that God has blessed me with and the deep intimacy we have formed through having and losing Chloe. I'm thankful that I no longer fear death and each day is easier because I know this life is only temporary. Any suffering that we may endure is only for a short time compared to our eternity in Heaven. I am more aware that this world is not my true home and trivial things don't matter anymore. It's amazing what you can learn from a 2 year old! We've grown in ways that would not have been possible if Chloe had been healed on this earth. For the growth I am thankful. I'm thankful for all of the precious memories we have of Chloe and the sweet dreams I have of her some nights. I'm thankful for all of the wonderful people that have prayed for us and continue to do so. Your prayers have carried us though this and given us strength. I'm thankful for Chloe's Miracle Foundation, Inc. and all of our generous donors. I could go on and on so I am thankful that I have more to be thankful for than not! I hope all of you have a wonderful and safe Thanksgiving! Thank you for your continued love, prayers, and support! We love you all! Kristy & Rick Wednesday, August 8. 2007Results of the bone marrow aspiration
Hi all. We talked to the doctor today, but we were not given an exact percentage of blasts. However, blasts were seen and the marrow was thick and difficult to remove. That is an indication of having significant blasts in her bone marrow. We were told that the bone marrow transplant at Duke is not an option because she clearly has more than 25% blasts in her bone marrow.
Please pray for her. She is still in a lot of pain and is getting continual Morphine. They tried a different pain medication last night because the Morphine wasn't working. Shortly afterwards her respiration and blood pressure dropped low. She was also breathing irregularly. So now it appears that we will only be able to use Morphine. They increased her dosage and that seems to have helped, but she is still in pain. She doesn't want to be touched or moved. She is only tolerating soft rubbing and kisses. The X-ray however showed that her lungs no longer appear to be collapsed at the bottom. We thank God for that! Please pray for a healing miracle for Chloe. Pray that the Holy Spirit will cleanse her blood and that all the blasts will die. Pray that He will touch her bone marrow and that it will begin to produce only healthy cells. Pray that every part of her that has been effected by leukemia or chemo will be healed and restored to wholeness so that she can live like a toddler should. Pray for every one that is praying for Chloe that they will be blessed and receive a large measure of faith so that we will all believe in this miracle that we are asking God for. Please pray for Rick and me to keep our faith strong no matter what lies ahead. Thank you all so much for your love and prayers. Tuesday, August 7. 2007Waiting on results
Hi all. We are still waiting on the results of her bone marrow aspiration. We are supposed to find out today and then have a family meeting with the doctor. Please lift Chloe up in prayer. She is in a lot of pain. They think that it is leukemic pain. The blasts are larger than regular blood cells and when you get a lot of them it causes bone pain. She is also retaining small amounts of fluid. We were told that it could be from overcrowding of the blasts that are causing her capillaries to leak into her interstitial space. She is also requiring oxygen when she sleeps because her levels are dropping too low. Her lungs have a small area that has collapsed at the bottom.
Seriously, when you pray for her please ask God for a healing miracle! We are at that point and she needs your prayers! Pray that the Holy Spirit will cleanse her body of the blasts and that her bone marrow will begin to produce healthy red blood cells and healthy platelets. Pray that He will breathe the breath of life into her lungs and repair them. Pray that He will ease her pain and heal her capillaries. Pray that He will heal every part of her that has been harmed by the chemo and leukemia. Also pray that every one praying will be given an increased measure of faith to believe without any doubt that God will heal her. We ask that you pray that His perfect will to be done in our lives. But keep praying without ceasing for a miracle. That is how he asks us to pray. Thank you all so much for your prayers! We love you all! Monday, August 6. 2007Bone marrow aspiration
Chloe's next bone marrow aspiration will be performed tomorrow (Tuesday) at 9 a.m. Please pray for a good report! Also, please pray for Chloe because she has been in a lot of pain. She has been getting Morphine around the clock to try to control it. Her right eye lid is also very swollen and she is running fevers again. She still doesn't have an immune system.
Please continue to pray for and believe in a healing miracle for Chloe. We are still staking our claim on God's promises for healing and we are still believing He will hear and answer our prayers! Thank you all for your prayers for Chloe! We love you all so much! Psalm 103 1-Praise the Lord, O my soul; all my inmost being, praise his holy name 2-Praise the Lord, O my soul, and forget not all his benefits- 3 who forgives all your sins and heals all your diseases, 4 who redeems your life from the pit and crowns you with love and compassion, 5 who satisfies your desires with good things so that your youth is renewed like the eagle's. Matthew 4:23-25 23Jesus went throughout Galilee, teaching in their synagogues, preaching the good news of the kingdom, and healing every disease and sickness among the people. 24News about him spread all over Syria, and people brought to him all who were ill with various diseases, those suffering severe pain, the demon-possessed, those having seizures, and the paralyzed, and he healed them. 25Large crowds from Galilee, the Decapolis,[a] Jerusalem, Judea and the region across the Jordan followed him. Matthew 8:16 16When evening came, many who were demon-possessed were brought to him, and he drove out the spirits with a word and healed all the sick. Matthew 12:15 15Aware of this, Jesus withdrew from that place. Many followed him, and he healed all their sick, Matthew 14:35-37 35 And when the men of that place recognized Jesus, they sent word to all the surrounding country. People brought all their sick to him 36and begged him to let the sick just touch the edge of his cloak, and all who touched him were healed. Luke 4:40 40When the sun was setting, the people brought to Jesus all who had various kinds of sickness, and laying his hands on each one, he healed them. Luke 8:47 47Then the woman, seeing that she could not go unnoticed, came trembling and fell at his feet. In the presence of all the people, she told why she had touched him and how she had been instantly healed. Acts 4:10 10then know this, you and all the people of Israel: It is by the name of Jesus Christ of Nazareth, whom you crucified but whom God raised from the dead, that this man stands before you healed. Acts 5:16 16Crowds gathered also from the towns around Jerusalem, bringing their sick and those tormented by evil spirits, and all of them were healed. Acts 9:34 34"Aeneas," Peter said to him, "Jesus Christ heals you. Get up and take care of your mat." Immediately Aeneas got up. John 10:10 The thief comes to only steal and kill and destroy; I have come that they may have life, and have it to the full. Praise God! Please continue to pray for Rick and me. Pray that we will keep our faith and continue to expect a miracle. Pray that we will be filled with the Holy Spirit so that we will be led in all of our upcoming decisions! Thank you! Friday, July 27. 2007Results of bone marrow aspiration
Hi everyone. We apologize for the delay in posting todays results. The results came back that she has 75 to 80% leukemic blasts in her bone marrow. That of course means that the last round of chemo was also ineffective in ridding Chloe's marrow of the leukemia. We are now faced with three options. There is one more chemotherapy agent that we have not yet tried. It is a newer drug and has less efficacy in the general population than the others we have tried. We have been told that it is a potent drug and that the side effects could potentially be worse than what she has had so far with a small chance of remission. Our next option is to take her home with drugs that will prolong her life for an uncertain amount of time. We would take her to the doctor's office for transfusions to support her. Our final option is to take her home with no supportive care and let the leukemia run its course. At this point she has a bacterial infection that has to be cleared before anything else can be done. She is receiving two different antibiotics to clear it out. They think that her port might be infected. They have been putting TPA in her port to break down any blood/bacteria and drawing it back out with a syringe. Cultures were sent to the lab today at 5:00 p.m. to see if there was bacteria in her port. She also spiked a fever tonight and her feet, hands, and mouth turned blue. They dropped a bolus (fluid ran at a high pace) to speed up her heart rate to increase circulation. They also gave her oxygen for about an hour. She perked up after that and seems to feel a lot better. She is still running a low grade fever. Continue to pray for the healing of the bacterial infection.
Please keep us in your prayers as we have some really difficult decisions to make in the days ahead. We want above all else to do God's will for Chloe's life as well as for ours. We are still praying for a miracle and we will not stop! We believe God is still the God of miracles! We believe God is still alive! God is more than capable of healing Chloe! We love Chloe so much, but God loves her more! God knows what is best for all of us. She belongs to God and we are so blessed that God chose us to be her parents. She is so special! She radiates the love of God. Please continue to pray for God's healing miracle in Chloe! God will heal her if it is His will! I will not believe otherwise. Don't lose faith and give up on Chloe. She needs your prayers of healing now more than ever! Pray that God will take Chloe's diseased blood and marrow and replace them with His perfect, holy blood and marrow. Believe He can and He will do this miracle for Chloe. If He choses not to then we will know that it was not His will and we will accept that and trust that He knows what is best for our lives. Until that happens I will not stop asking Him constantly for a miracle! I will not stop expecting a miracle until God tells me to. I pray that all of you will stand in agreement with me. "For surely I know the plans I have for you,' says the Lord, ' plans for your welfare and not for harm, to give you a future with hope…when you call upon me and come and pray to me, I will hear you." (Jeremiah 29:11-12) Thank you all so much for your prayers! You have touched our hearts so deeply and we appreciate each and everyone of you more than you could possibly know. Just keep on praying for a healing miracle!! I will be posting healing scriptures and I ask that you meditate over them and lift up Chloe and anyone else that may need healing before our Lord. Also continue to pray for the complete healing of Kennedy Garcia. Pray for God tom strengthen her family. Pray that God will guide and direct the doctors to choose the right medications for her. Keep her free from infections and preserve her little body from the unwanted side effects of the chemo. We thank God for Kennedy and her family! They are such a blessing! Wednesday, July 25. 2007Prayer today between 3:00 and 3:30 p.m. EST
Hi all. Please remember to pray for Chloe today between 3:00 and 3:30 p.m. We will be laying hands on her and praying for healing for her at that time. We want to say thank you to everyone that continually prays for Chloe. We appreciate your prayers, love, and support more than words could ever express.
Right now we are playing the waiting game with Chloe. She is receiving antibiotics for the bacterial infection that she has. She has been running a low grade fever and has been crying and whimpering a lot. They gave her Morphine yesterday because she was crying uncontrollably. She slept good, but still appears to be in pain and just isn't quite herself. We also found out yesterday that she has blasts showing up in her blood again. They will not know if it is Leukemic blasts or immature cells from her Neupogen shots until the bone marrow results on Thursday. Please pray hard for Chloe! Thursday is a huge day for our family and we need all of the prayers we can get. Please pray for her healing constantly through out the day today. Thank you all so much! UPDATE ON BLASTS: She has 88% blasts showing up in her blood today. The doctors do not feel that it is from her Neupogen shots. They feel it is Leukemic blasts because there are so many of them. Please pray for a healing miracle! Monday, July 23. 2007Prayer for Chloe from 3:00 to 3:30 p.m. EST on Wednesday, July 25th
We have made plans with a local pastor to come out and lay hands on Chloe on Wednesday, July 25th at 3:00 to 3:30 p.m. We will be joined by one of the other mothers on Chloe's unit. This mother has strong faith and is such a blessing to us! There will be four of us laying hands on and praying for Chloe.
We know that you can not be there to join us in laying on hands, but please stop what you are doing at some point between 3:00 and 3:30 and say a prayer for Chloe. Pray that God will heal her and restore her to wholeness. Pray that the Holy Spirit will drive out all of the leukemic blasts from her bone marrow and that she will be in complete remission on Thursday. Also pray that He will rid her of the bacterial infection that she currently has. Pray that He will heal her and that she will be able to continue her special mission on this Earth to build up His kingdom. Pray that she will live a long, healthy, happy, and spirit filled life! Thank God for healing Chloe! Ask all of these things according to His will. Remember, the doctor has given her a 10% chance of survival. We really need prayer for Chloe. I don't know how she'll survive without God's divine intervention. If God leads you to do so please fast and pray for Chloe starting tonight until Thursday at noon. We appreciate all of your prayers so much. There is so much power in our prayers! We especially appreciate those of your who are joining us in fasting for her healing. We appreciate so much that you will make yourself uncomfortable and make sacrifice for Chloe's healing. We'll be praying that God will bless all who are fasting with renewal, increased faith, and a deeper love of God. We love you all and thank you all for your prayers and support. Monday, July 23. 2007Update on bone marrow aspiration from 7-11-07
Hi all! I just realized that we had not posted an update concerning Chloe's last bone marrow aspiration. I had posted that she had blasts in her blood and that they were going to do a bone marrow aspiration to see what was going on. The bone marrow that was performed on Wednesday July 11th revealed that she had 66% leukemic blasts in her bone marrow. The last round of chemo was ineffective. The doctor also told us that if she had to give Chloe a percentage of survival she would have to say 10%. We are not listening to percentages and pray that none of you will either. Our God is still the God of miracles and we are still expecting a miracle! We are only telling you about the percentage so that you will know exactly what we are hearing and when she is healed we will all know that it was the work of God. Also, so you will know how much she still needs your prayers.
On a more positive note they found a donor for her! She has two bags of umbilical cord blood waiting on her at Duke. One bag is a 5 out of 6 match and the other bag is a perfect 6 out of 6 match! We thank God and praise God for answering all of our prayers. Like I said before we are on God's time table. Pray for our patience and strength as we wait on Him. Since Chloe's last round of chemo was ineffective she went through another treatment called FLAG. The blasts have cleared from her blood, but we do not yet know the results of her bone marrow. Thursday they will be doing another bone marrow aspiration to see if it worked. Please pray that she will be in full remission on Thursday! She only has to be 25% in remission to go to Duke for her bone marrow, but I want every one to pray for a full remission. The closer she is to remission before the bone marrow transplant the greater the chance of getting rid of this disease! So please pray for full remission on Thursday if it be God's will. We are also waiting to find out if they are going to remove her port that had infection around it. They are waiting on the results of the bone marrow because they may decide to leave it in if she is not in remission. If she is in remission they will have to remove it anyway because she will need a different type of central line for the bone marrow transplant. So basically, please pray that she will be in remission on Thursday and for her bacteria infection to completely clear out of her system. Also, please pray for Rick and I to get rest and to keep our faith strong. Thank you all so much for all of the love, support, and prayers. May God bless you all! You mean so much to us! Also, don't forget to look at Chloe's latest photo entries. They are titled "Chloe 23 months at home" and "Happy Birthday Chloe!" Tuesday, July 10. 2007Blasts in Chloe's Blood
We found out today that leukemic blasts were found in Chloe's blood when her CBC (complete blood count) was sent to the lab. This is the first time that blasts have been found in Chloe's blood. Previously it has only shown up in her marrow. She will be receiving a platelet transfusion tomorrow (Wednesday) around 2:00 a.m. Around 8:00 a.m. the doctor will be performing a bone marrow aspiration to see what is going on in her marrow. It does not appear that the last round of chemo was effective. We will know more tomorrow after the procedure. We know that this is God's will because we have all prayed that He will fill her with His Holy Spirit and remove all disease and negativity. If anything remains we know that it is by His will alone. We are not giving up hope and we are not losing our faith! Please continue to pray for Chloe's complete healing and restoration of health. Pray that God will lead the doctors to find the drugs that will work to rid Chloe of this disease! We also know that it may not be God's will to heal Chloe. We are not ignorant to that, but we are going to continue to pray for and expect a healing miracle for Chloe. Pray that Chloe will be healed and that God will receive all of the glory! Help us to remember that with God all things are possible!
1 John 5:13-15 13- I write these things to you who believe in the name of the Son of God so that you may know that you have eternal life. 14- This is the confidence we have in approaching God: that if we ask anything according to His will, he hears us. 15- And if we know that He hears us-whatever we ask-we know that we have what we asked of Him. NIV We can only see where we are right now, but God holds the keys to the future and has a plan. Please continue to pray for God to deliver a healing miracle for Chloe and that she will be completely healed. We may not always state it, but we ask ALL things according to His will for our lives. Also, please pray for Kennedy Garcia. Kennedy also has Down's Syndrome and was diagnosed with Acute Myeloid Leukemia in April. She is in round 4 of her chemo. She is on a different protocol because she is allergic to AraC. Pray that God will guide the doctors to choose the right drugs for her. Also pray that God will pour His Holy Spirit out on her to preserve her from the unwanted side effects of the chemo and restore her to health. Please remember her when you pray for Chloe. Pray that these two special, beautiful little girls will receive a miracle from God and will be able to meet one day. I had exchanged emails with her mother in the past when we were at Ft. Campbell, KY. We moved before we had a chance to meet them. I just found out about her diagnosis. Pray for both of our little angels. Thank you all for your faithful prayers and support! Don't forget to sign our guestbook. It means so much to us! Love, Kristy, Rick, and Chloe Saturday, July 7. 2007Happy Birthday Chloe!
Today is Chloe's 2nd birthday as many of you know. She is still in the hospital receiving care for the side effects that she encountered as a result of the last round of chemo. She spiked two fevers, but to date nothing has grown in her blood cultures. She is receiving antibiotics as a precaution since she is still very neutropenic (without an immune system). Her calorie count is also being watched because she wasn't taking in enough calories. She is taking an appetite stimulant twice a day and that seems to be helping. Her IV fluids were cut back and we have seen an improvement with her intake of oral fluids. She was supposed to have a feeding tube put in yesterday, but since her appetite has picked up some the doctor decided to reevaluate her on Monday. Pray that she will continue to eat well and gain weight. It appears that she is getting enough calories at this point, but the nutricionist will confirm that on Monday. Other than that she is doing well and is once again in good spirits! She had a few rough days, but seems to be over the hump. However, she still doesn't have an immune system and her counts are still dropping. She will be supported through transfusions as she has in the past. Pray for quick recovery of her counts so that she can go to the next round of chemo. It's important that she gets her next round in a timely manner because the success of the treatments will be more favorable. Also we will not know if she is in remission until she recovers and undergoes the next bone marrow aspiration. Please just keep her in your prayers for complete remission and complete healing. Pray that God will restore her health and make her whole once again. We thank God that He has been with her so far and carried her safely through all that she has been through. We thank God that He has made her such a strong, beautiful little girl. She's an inspiration to us everyday. We thank you all for your prayers and support. You all make an incredibly difficult situation more bearable!
Chloe is having a birthday party tomorrow in the playroom in her unit. We are having an Elmo theme because she loves Elmo. We will post pictures as soon as we have time. Pray that she'll feel good on her birthday and be reborn to good health. Once again, thank you all for your prayers! Keep praying for a healing mircale for Chloe! Thursday, June 21. 2007A Fun Filled Day!
Chloe had a great day and felt great today. The only side effects that she has had from the chemo are low grade fevers and a decreased appetite at times. Her appetitie has been increased late at night though and she has been eating well then. It's amazing that she is doing better on the chemo than she ever has, even though this is a stronger treatment. Praise God for answered prayers!
She had a lot of fun today. She went down to the physical therapy gym and played with blocks and bubbles. She also worked out on the exercise ball, climbed some steps, and walked on an incline mat. After all of this activity she then walked out of the gym, all the way to the elvevator, and back to the her unit. The therapists and I were amazed at her stamina. Once we got back to her unit she just kept walking! Then she put on a dance show for every one in the hallway. She can really draw a crowd! She was laughing, smiling, and playful for the majority of the day. We hope that you will all know how much we appreciate your words of encouragement and prayers! Thank you for the new additions to the guestbook! We read them and they made us cry and grateful to have such wonderful family and friends. Please keep praying for her. Keep praying for God to pour His Holy Spirit out on her and to heal her and keep her protected from unwanted side effects, infection, and disease. Pray that He'll fill her hospital room full of the Holy Spirit and to drive out all negativity. Pray for angels for her protection. Also continue to pray for Rick and I to keep our faith strong and to grow closer together each day. It's a high stress situation and we are human. Our family is under attack by Satan, but we know we don't have to be defeated! Christ died for us and we died with Him at calvary so that we would also share Christ's power and authority over Satan and his attacks. We will not be defeated! We are sealed and protected by Christ's blood! God is going to work a miracle and show us all His great power and how small Satan really is. We thank God for the miracles that He is already working in Chloe's life and in ours. We'll be praying for miracles for all of you too! Thank you again for all of your prayers! Please keep praying for Chloe and for us! We really need your prayers and support! Keep signing the guestbook because it brings us so much comfort. We love you all! Wednesday, June 20. 20077 Day Treatment
Hi every one. It has been several days since we have listed an update. We have been busy at the hospital. She is currently on a 7 day treatment of chemo. She is getting a higher dose of Cytarabine than she had the last time. She is also going to be getting a new chemo tomorrow. It is in the same family as one of the chemos that she had last time. It was after this drug was removed from her protocol that she relapsed. It is the hope of the doctors that this new chemo will bring her back into remission. A bone marrow transplant is in the future, but for now we are just taking a day at a time.
Chloe cried a lot for the first two days of chemo and didn't have much of an appetite. We have been busy adding her to prayer request lists every where both nationally and internationally. She has felt better today and has had more of an appetite. Your prayers do work! Thank you so much for them! We believe that God is working a miracle and that He is going to heal Chloe. Please continue to pray for all of us. Spread the word about her web-site and please sign the guestbook. It doesn't matter if you sign it every day five times a day. We do read them and we really need the encouragement and to know that she is being prayed for. We ask that you specifically pray for God to fill her with His Holy Spirit and to heal her and protect her from the unwanted side effects of the chemo and life threatening infections that she is at a high risk of developing. Pray that she will have an appetite so that her body will be nourished. Also pray that her hospital room will be filled with the Holy Spirit and that all negativity will be driven out. Pray for Him to send angels to gurard her room for protection. Also pray for me and Rick to be able to keep our faith strong and to not yield to negativity and doubt so that we can keep our focus on God rather than fear. Also pray for the doctors and nurses that are treating Chloe. Pray that the Holy Spirit will guide them with making the right decisions with treating Chloe and the other children. Pray that God will bless them with peace and rest so that they will have clear minds. Pray that I will not forget that God is in control and that we are at this hospital with these doctors because this is where He wants her. They are doing an excellent job! We have found comfort in the following scripture... Isaiah 53:3-5 3- He was despised and rejected by men, a man of sorrows, and familiar with suffering. Like one from whom men hide their faces he was despised and we esteemed him not. 4- Surely he took up our infirmities and carried our sorrows, yet we considered him stricken by God, Smitten by him, and afflicted. 5- But he was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was upon him, and by his wounds we are healed. We believe that Christ died so that Chloe could be healed. He died for all of us not just for salvation, but that we could have happy, rewarding lives here on earth. It is not God's intention for any of us to suffer and have pain whether it is physical or emotional. We are staking our claim to that truth in believing that Chloe will be healed. Through all of our prayers and faith she will be healed! |
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